Concept of quality of life in health care research: a review
DOI:
https://doi.org/10.18203/2394-6040.ijcmph20232869Keywords:
Health status, QoL, QoL models, WHO, WHO QOL -100Abstract
Quality of life (QoL) is the most studied concept in health care research. With an increase in life expectancy and consequently with more prevalence of chronic diseases, the QOL needs to be paid attention. It is a multifactorial concept and many tools are adopted to study QOL. The present article analyses the concept of QOL in the context of healthcare research. Articles for this were searched from PubMed, CINAHAL, Cochran and EBSCO. A detailed review of QoL in health care research including its components, models and various tools being used with their application are discussed in the current article.
References
World Health Organization. WHOQOL: Measuring Quality of Life. Available at http://www.who.int/healthinfo/survey/whoQoL-qualityoflife/en/. Accessed on 23 June, 2023.
Post MW. Definitions of quality of life: what has happened and how to move on. Top Spinal Cord Inj Rehabil. 2014;20(3):167-80.
Sosnowski R, Kulpa M, Ziętalewicz U, Wolski JK, Nowakowski R, Bakuła R et al. Basic issues concerning health-related quality of life. Cent European J Urol. 2017;70(2):206-11.
Hand C. Measuring health-related quality of life in adults with chronic conditions in primary care settings: Critical review of concepts and 3 tools. Can Fam Physician. 2016;62(7):e375-83.
Karimi M, Brazier J. Health, Health-Related Quality of Life, and Quality of Life: What is the Difference? Pharmacoeconomics. 2016;34(7):645-49.
Pinto S, Fumincelli L, Mazzo A, Caldeira S, Martins JC. Comfort, well-being and quality of life: Discussion of the differences and similarities among the concepts. Porto Biomedical J. 2017;2(1);6-12.
Pietersma S, De Vries M, Van den Akker-van Marle ME. Domains of quality of life: results of a three-stage Delphi consensus procedure among patients, family of patients, clinicians, scientists and the general public. Qual Life Res. 2014;23(5):1543-56.
Bahrami M, Parker S, Blackman I. Patients' quality of life: a comparison of patient and nurse perceptions. Contemp Nurse. 2008;29(1):67-79.
Kerce EW. Quality of life meaning measurement and models. Available at: https://apps.dtic.mil/dtic/tr/fulltext/u2/a250813.pdf. Accessed on 5 July, 2023.
Németh G. Health related quality of life outcome instruments. Eur Spine J. 2006;15(1):S44-51.
Center for disease control and prevention. HRQOL concepts. Available at: https://www.cdc.gov/HRQoL/concept.htm#2. Accessed on 5 July, 2023.
Ilić I, Šipetić S, Grujičić J, Mačužić IŽ, Kocić S, Ilić M. Psychometric Properties of the World Health Organization's Quality of Life (WHOQOL-BREF) Questionnaire in Medical Students. Medicina (Kaunas). 2019;55(12):772.
Kivits J, Erpelding ML, Guillemin F. Social determinants of health-related quality of life. Rev Epidemiol Sante Publique. 2013;61(3):S189-94.
Singh K, Kondal D, Shivashankar R, Ali MK, Pradeepa R, Ajay VS et al. Health-related quality of life variations by sociodemographic factors and chronic conditions in three metropolitan cities of South Asia: the CARRS study. BMJ Open. 2017;7(10):e018424.
Matalqah LM, Radaideh KM, Khatatbeh MM, Omari OA. Factors associated with health- related quality of life among a Northern Jordanian population. Epidemiology Biostatistics and Public Health. 2018;15(1):1-8.
Basavaraj KH, Navya MA, Rashmi R. Quality of life in HIV/AIDS. Indian J Sex Trauma Dis AID. 2010:31(2);75-80.
Cho HJ, Park E. Quality of Life of Chronic Hepatitis C Patients and Its Associated Factors. Osong Public Health Res Perspect. 2017;8(2):124-9.
Pequeno NPF, Cabral NLA, Marchioni DM. Quality of life assessment instruments for adults: a systematic review of population-based studies. Health Qual Life Outcomes. 2020;18(1):208.
Hyde M, Wiggins RD, Higgs P. A measure of quality of life in early old age: the theory, development and properties of a needs satisfaction model (CASP-19). Aging Ment Health. 2003;7(3):186-94.
Devlin NJ, Brooks R. EQ-5D and the EuroQoL Group: Past, Present and Future. Appl Health Econ Health Policy. 2017;15(2):127-37.
Kim S, Won CW, Kim BS, Kim S, Yoo J, Byun S et al. EuroQoL Visual Analogue Scale (EQ-VAS) as a Predicting Tool for Frailty in Older Korean Adults: The Korean Frailty an Aging Cohort Study (KFACS). J Nutr Health Aging. 2018;22(10):1275-80.
Moriarty DG, Zack MM, Kobau R. The Centers for Disease Control and Prevention's Healthy Days Measures -population tracking of perceived physical and mental health over time. Health Qual Life Outcomes. 2003;1:37.
Katzan IL, Lapin B. PROMIS GH (Patient-Reported Outcomes Measurement Information System Global Health) Scale in Stroke: A Validation Study. Stroke. 2018;49(1):147-54.
Ware JE Jr, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care. 1992;30(6):473-83.
Ferreira J, Silveira P, Figueiredo MM, Andrade C, João F, Marques JA. Validation of the Portuguese version of the Asthma Quality of Life Questionnaire [AQLQ-M] by Marks. Revista Portuguesa de Pneumologia. 2005;11(4):351-66.
Aaronson NK, Ahmedzai S, Bergman B, Bullinger M, Cull A, Duez NJ et al. The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology. J Natl Cancer Inst. 1993;85(5):365-76.
Weitzner MA, Jacobsen PB, Wagner H Jr, Friedland J, Cox C. The Caregiver Quality of Life Index-Cancer (CQOLC) scale: development and validation of an instrument to measure quality of life of the family caregiver of patients with cancer. Qual Life Res. 1999;8(1-2):55-63.
Levine MN, Guyatt GH, Gent M, De Pauw S, Goodyear MD, Hryniuk WM et al. Quality of life in stage II breast cancer: an instrument for clinical trials. J Clin Oncol. 1988;6(12):1798-810.
Mystakidou K, Tsilika E, Kouloulias V, Parpa E, Katsouda E, Kouvaris J et al. The "Palliative Care Quality of Life Instrument (PQLI)" in terminal cancer patients. Health Qual Life Outcomes. 2004;2:8.
Liluashvili S, Kituashvili T. Dermatology Life Quality Index and disease coping strategies in psoriasis patients. Postepy Dermatol Alergol. 2019;36(4):419-24.
Yarlas A, Maher S, Bayliss M. The Inflammatory Bowel Disease Questionnaire in Randomized Controlled Trials of Treatment for Ulcerative Colitis: Systematic Review and Meta-Analysis. J Patient Cent Res Rev. 2020;7(2):189-205.
Astrøm AN, Okullo I. Validity and reliability of the Oral Impacts on Daily Performance (OIDP) frequency scale: a cross-sectional study of adolescents in Uganda. BMC Oral Health. 2003;3(1):5.
Hsiung PC, Fang CT, Wu CH. Validation of the WHOQOL-HIV BREF among HIV-infected patients in Taiwan. AIDS Care. 2011;23(8):1035-42.
Younossi ZM, Guyatt G, Kiwi M, Boparai N, King D. Development of a disease specific questionnaire to measure health related quality of life in patients with chronic liver disease. Gut. 1999;45:295-300.
Heffernan N, Cella D, Webster K, Odom L, Martone M, Passik S et al. Measuring health-related quality of life in patients with hepatobiliary cancers: the functional assessment of cancer therapy-hepatobiliary questionnaire. J Clin Oncol. 2002;20(9):2229-39.
Woodward JM, Hass SL, Woodward PJ. Reliability and validity of the sexual life quality questionnaire (SLQQ). Qual Life Res. 2002;11(4):365-77.
Atala-Acevedo C, Zaror C, Espinoza-Espinoza G. Adaptation and validation of the PEDSQL™ oral health scale for toddlers in Chilean population. BMC Oral Health. 2020;20(1):6.
Altshuler SJ, Poertner J. The child health and illness profile-adolescent edition: assessing well-being in group homes or institutions. Child Welfare. 2002;81(3):495-513.
Liu R, Wu S, Hao Y, Gu J, Fang J, Cai N et al. The Chinese version of the world health organization quality of life instrument-older adults module (WHOQOL-OLD): psychometric evaluation. Health Qual Life Outcomes. 2013;11:156.
Bilotta C, Bowling A, Nicolini P, Casè A, Pina G, Rossi SV et al. Older People's Quality of Life (OPQOL) scores and adverse health outcomes at a one-year follow-up. A prospective cohort study on older outpatients living in the community in Italy. Health Qual Life Outcomes. 2011;9:72.
Higginson IJ, Carr AJ. Measuring quality of life: Using quality of life measures in the clinical setting. BMJ. 2001;322(7297):1297-3000.
Maly M, Vondra V. Generic versus disease-specific instruments in quality-of-life assessment of chronic obstructive pulmonary disease. Methods Inf Med. 2006;45(2):211-15.
Sosnowski R, Kulpa M, Ziętalewicz U, Wolski JK, Nowakowski R, Bakuła R et al. Basic issues concerning health-related quality of life. Cent European J Urol. 2017;70(2):206-11.
Wilson IB, Cleary PD. Linking clinical variables with health-related quality of life. A conceptual model of patient outcomes. JAMA. 1995;273(1):59-65.
Ferrans CE. Development of a conceptual model of quality of life. Sch Inq Nurs Pract. 1996;10(3):293-304.
Quality of life research unit. University of Toronto. Available at: http://sites.utoronto.ca/QoL/QoL_ model.htm. Accessed on 02 July, 2023.
Bakas T, McLennon SM, Carpenter JS. Systematic review of health-related quality of life models. Health and Quality of Life Outcomes. 2012;10:134 .