Evaluation of a hospital-based surveillance system for birth defects in Chennai, India
DOI:
https://doi.org/10.18203/2394-6040.ijcmph20214293Keywords:
Birth defects, Registries, India, Surveillance, EvaluationAbstract
The Birth Defects Registry of India-Chennai (BDRI-C) was created in 2001 to monitor birth defects and provide timely referrals. Using established guidelines to evaluate surveillance systems, we examined the following attributes of BDRI-C to help strengthen the registry: simplicity, flexibility, data quality, representativeness, acceptability, timeliness, and stability. We reviewed BDRI-C documents, including reporting forms; interviewed key informants; and calculated data completeness, coverage, and reporting time. BDRI-C captured 14% of the births in Chennai April 2013 - March 2014. About 7% of institutions in Chennai registered in BDRI-C, and of those registered, 37% provided data in 2013. Median reporting time was 44 days after birth in 2013. BDRI-C is a useful, simple, flexible, and timely passive birth defects surveillance system; however, improvements can be made to ensure BDRI-C is representative of Chennai, data processing and quality checks are on-going, and the system is acceptable for member institutions and stable.
References
Congenital anomalies. Available at: https://www. who.int/news-room/fact-sheets/detail/ congenital-anomalies. Accessed on 3 September 2020.
A national estimate of the birth prevalence of congenital anomalies in India: systematic review and meta-analysis. Available at: https://www.ncbi.nlm. nih.gov/pmc/articles/PMC5970488/. Accessed on 3 September 2020.
Penchaszadeh VB. Preventing Congenital Anomalies in Developing Countries. Community Genet. 2002;5(1):61-9.
JaypeeDigital | Birth Defects Surveillance in India—A Methodological Approach. Available at: https://www.jaypeedigital.com/book/9788180617669/chapter/ch4. Accessed on 23 August 2020.
Suresh S, Thangavel G, Sujatha J, Indrani S. Methodological issues in setting up a surveillance system for birth defects in India. Natl Med J India. 2005;18(5).
Phc K. New Dr. Muthulakshmi Reddy Maternity Benefit Scheme details-- guidelines KAMMAPURAM PHC. Available at: http://kpmbphc.blogspot.in/2012/01/new-dr-muthulakshmi-reddy-maternity.html. Accessed on March 2015.
Ravi RP, Kulasekaran RA. Changing Trends on the Place of Delivery among Rural Women of Tamilnadu State in India. World Appl Sci J. 2013;26(2):282-8.
South-East Asia Region New-born and Birth Defects (SEAR-NBBD) Surveillance Initiative. Available at: https://www.who.int/southeastasia/sear-nbbd. Accessed on 16 October 2021.
World Health Organization, New-born and Birth Defects (NBBD) Surveillance Initiative. SEARO. Available at: http://www.searo.who.int/child_ adolescent/nbbd/web/en/. Accessed on 23 August 2020.
