Barriers and factors influencing how adults with type 2 diabetes perceive their risk of developing diabetes-related complications: a qualitative study
DOI:
https://doi.org/10.18203/2394-6040.ijcmph20262213Keywords:
Barriers, Complications, Constructivist grounded theory, Facilitators, Risk perception, Type 2 diabetes mellitusAbstract
Background: Delayed diagnosis and poor management of type 2 diabetes can lead to severe acute and long-term complications, such as early death or disability. Research evidence has shown that without consistent and effective self-management practices, individuals with type 2 diabetes face a higher risk of avoidable complications. These self-management practices are mainly influenced by individuals’ perceptions of the risks linked to diabetes complications. Due to poor self-management practices particularly in Sub-Saharan Africa, it is crucial to identify the barriers and enablers that shape patients’ perceptions of their risk of developing complications.
Methods: Twenty-three individuals with type 2 diabetes were purposively and theoretically sampled from purposively selected community pharmacies in Harare, Zimbabwe, between October 2023 and January 2024 and participated in semi-structured interviews.
Results: The analysis of the data revealed that participants perceived risk of complications differently: some perceived a higher risk, while others perceived a lower risk, based on the meanings they ascribed to living with type 2 diabetes. Facilitators to perception of risks of complications were: (i) having personal risk experiences; (ii) information-seeking; and (iii) engaging in health-seeking behaviours. In contrast, barriers to perception of risks of complications were: (i) holding cultural or religious beliefs; (ii) being in denial about the illness; and (iii) lacking knowledge about diabetes.
Conclusions: This study explored the factors shaping patients’ perceptions of risks for developing diabetes-related complications. It offers important insights into risk perception research in resource-constrained environments and assists healthcare providers and policymakers in developing strategies to support those at higher risk of such complications.
References
Huang X, Wu Y, Ni Y, Xu H. Global regional and national burden of type 2 diabetes mellitus caused by high BMI from 1990 to 2021 and forecast to 2045: analysis from global burden of disease study 2021. Front Public Health. 2025;13.
Sun H, Saeed P, Karurang S. IDF Diabetes Atlas: Global, regional and country level diabetes prevalence estimates from 2021 and projection for 20245. Diabetes Res Clin Pract. 2022;183:109119.
IDF. The Diabetes Atlas 589 million adults (20-79 years) are living with diabetes worldwide. 2025. Available from: https://diabetesatlas.org/. Accessed on 1 March 2026.
Ernersson Å, Mufunda E, Hjelm K. Audit of essential knowledge of diabetes in patients with diabetes in Zimbabwe. Pan Afr Med J. 2023;45(103):103.
Zhang Z, Wang X, Li S, Liu Y, Li Y, Jia H. Barriers and facilitators of complications risk perception among rural patients with type 2 diabetes mellitus: a qualitative content analysis. BMC Public Health. 2025;25(1):1110-9.
Stephani V, Opoku D, Beran D. Self-management of diabetes in Sub-Saharan Africa: a systematic review. BMC Public Health. 2018;18(1):1148-11.
Rouyard T, Kent S, Baskerville R, Leal J, Gray A. Perceptions of risks for diabetes‐related complications in type 2 diabetes populations: a systematic review. Diabetic Med. 2017;34(4):467-77.
Zhang S, Yang Q, Shi X, Zhang Y. Study on the influence mechanism of perceived benefits on unsafe behavioural decision-making based on ERPs and EROs. Front Neurosci. 2023;17:1231592.
Choi SA, Choi SA, Hastings JF. Religion, spirituality, coping and resilience among African, Americans with diabetes. J Religion Spiritual Soc Work. 2019;38(1):93-114.
Charmaz K. Constructing grounded theory: a practical guide through qualitative analysis. 1st edn. London: Sage; 2006.
Corbin JM, Strauss A. Basics of Qualitative Research. 3rd ed. Los Angeles: SAGE Publications Inc; 2008.
Brewer NT, Chapman GB, Gibbons FX, Gerrard M, McCaul KD, Weinstein ND. Meta-analysis of the relationship between risk perception and health behavior. Health Psychol. 2007;26(2):136-45.
Rovner BW, Haller JA, Murchison AP, Hark LA, Casten RJ. Depression and risk perceptions in older Africa American with diabetes. Diabetes Spectr. 2014;27(2):114-8.
Kahneman D. Thinking, fast and slow. Penguin Books, London; 2011.
Rehm J, Lachenmeier DW, Room R. Why does society accept a higher risk for alcohol than for other voluntary or involuntary risks? BMC Med. 2014;12:189.
Tesfa GA, Demeke AD, Ngusie HS. Health information-seeking behaviour among people living with two common chronic diseases in low and middle-income countries (LMICs). A systematic and meta-analysis. Digit Health. 2024:10:20552076241302241.
Powe BD. Health information seeking among rural African Americans, Caucasians, and Hispanics. Nurs Clin North Am. 2015;50(3):531-43.
Ward H, Mertens TE, Thomas C. Health Seeking Behaviour and the Control of Sexually Transmitted Disease. Health Polic Plan. 1997;12(1):19-28.
Nimesh V, Halder A, Mitra A, Kumar S, Joshi A, Joshi R, et al. Patterns of healthcare seeking behavior among persons with diabetes in Central India: a mixed method study. J Fam Med Prim Care. 2019;8(2):677-83.
Du Q, Zhang Z, Yang Y, Luo X, Liu L, Jia H. How health seeking behavior develops in patients with type 2 diabetes: a qualitative study based on health belief model in China. Front Public Health. 2024;12:1414903.
Ochieng JM, Crist JD. “I put diabetes on the shelf”: African American Women’s Perceptions of Risk for Diabetes Complications. Clin Nurs Res. 2021;30(7):1012-22.
Onuorah L, Santy-Tomlinson J, Draper P. Diabetes knowledge, risk and severity perceptions, lifestyle behaviours and management barriers among Sub-Saharan African immigrants living in the UK: an ethnographic study. BMC Public Health. 2025;25(1):2883-16.
Schwarzer R, Luszczynska A. How to overcome health-compromising behaviors. Eur Psychol. 2008;13(2):141-51.
Mollar IB, Hagger V, Rothmann MJ, Rasmussen B. The role of community organisation, religion, spirituality and cultural beliefs on diabetes social support and self-management in Sub-Sahara Africa: integrative literature review. J Religion Health. 2025;64:2407-64.
Bhurosy T, Jeewon R. Overweight and obesity epidemic in developing countries: a problem with diet, physical activity, or socioeconomic factors? Sci World J. 2014;2014:964236.
Omodara DA, Gibson L, Bowpitt G. Exploring the impact of cultural beliefs in the self-management of type 2 diabetes among Black sub-Saharan Africans in the UK- a qualitative study informed by the PEN-3 cultural model. Ethnicity Health. 2022;27(6):1358-76.
Zimmermann M, Bunn C, Namadingo H, Gray CM, Lwanda J. Experiences of type 2 diabetes in sub-Saharan Africa: a scoping review. Glob Health Res Policy. 2018;3(1):25-33.
Iregbu SC, Duggleby W, Spiers J, Salami B. An interpretive description of sociocultural influences on diabetes self-management support in Nigeria. Glob Qualitat Nurs Res. 2022;9:23.
Petrie KJ, Weinman J. Patients’ perception of their illness. Curr Direct Psychol Sci. 2012;21:60-5.
Patierno C, Fava GA, Carrozzino D. Illness denial in medical disorders: a systematic review. Psychother Psychosom. 2023;92:211-26.
Jones L, Crabbs S, Oxlad M. Barriers and facilitators to effective type 2 diabetes management in a rural context: a qualitative study with diabetic patients and health professionals. J Health Psychol. 2013;19(3).
Telford K, Kralik D, Koch T. Acceptance and denial: implications for people adapting to chronic illness: literature review. J Adv Nurs. 2006;55(4):457-64.
Hanif W, Susarla R. Diabetes and cardiovascular risk in UK South Asians: an overview. Br J Cardiol. 2018;25(suppl 2):S8-13.
Siam NH, Snigdha NN, Tabasumma N, Parvin I. Diabetes mellitus and cardiovascular disease: exploring epidemiology, pathophysiology, and treatment strategies. Rev Cardiovasc Med. 2024;25(12):436.
Reid MJA, Billy T. ‘It would have been better if I had HIV instead of diabetes’ South Afr Med J. 2014;104(5):325.
Afaya RA, Bam V, Azongo TB, Afaya A. Knowledge of chronic complications of diabetes among persons living with type 2 diabetes mellitus in northern Ghana. PloS One. 2020;15(10):e0241424.
Obirikorang Y, Obirikorang C, Anto EO, Acheampong E, Batu EN, Stella AD, et al. Knowledge of complications of diabetes mellitus among patients visiting the diabetes clinic at Sampa Government Hospital, Ghana: a descriptive study. BMC Public Health. 2016;16(1):637-8.
Frijling BD, Lobo CM, Keus IM, Jenks KM, Akkermans RP, Hulscher MEJL, et al. Perceptions of cardiovascular risk among patients with hypertension or diabetes. Patient Educ Counsell. 2004;52(1):47-53.
Price HC, Dudley C, Barrow B, Griffin SJ, Holman RR. Perceptions of heart attack risk amongst individuals with diabetes. Prim Care Diabetes. 2009;3(4):239-44.
Kumar L, Mohammadnezhad M. Perceptions of patients on factors affecting diabetes self-management among type 2 diabetes mellitus (T2DM) patients in Fiji: a qualitative study. Heliyon. 2022;8(6): e09728.