Holding on through crisis: mothers’ experiences in the neonatal intensive care unit

Abstract

Motherhood is often seen as a transformative and fulfilling journey; however, this experience is profoundly disrupted when infants are admitted to a neonatal intensive care unit (NICU), leading to fear, uncertainty, and emotional distress. The sudden physical separation, exposure to complex medical care, and disruption of expected caregiving roles challenge mothers’ emotional well-being, coping mechanisms, and developing maternal identity. This study explored the lived experiences of mothers with infants in the NICU, focusing on the meanings they attach to these experiences. Eight mothers with infants admitted to a government hospital’s NICU in Southwestern Mindanao shared their experiences. Findings revealed four interconnected themes. First, mothers experienced embodied struggle and transformative resilience, marked by physical exhaustion and emotional strain while gradually developing coping strategies. Second, they navigated issues of safety, control, and emotional security within the NICU environment. Third, supportive relationships and guidance from healthcare providers and family members emerged as essential in helping mothers understand and manage their situation. Finally, relational support served as a lifeline that sustained mothers throughout the hospitalization period. The study concludes that although NICU experiences are highly challenging, they also foster resilience, self-growth, and adaptive coping among mothers. A structured and supportive environment, along with strong relational connections, plays a crucial role in promoting maternal well-being and caregiving capacity. These findings highlight the importance of family-centered care, consistent emotional support, and responsive communication in improving maternal experiences during neonatal hospitalization.