Experiences of fistula survivors, a case study of Bungoma, Kilifi and Kiambu Counties, Kenya

Authors

  • Henry Kilonzo Safaricom and MPESA Foundation Safaricom House, Waiyaki Way, Nairobi, Kenya and of P. O. Box 66827-00800, Nairobi
  • Karen Basiye Safaricom and MPESA Foundation Safaricom House, Waiyaki Way, Nairobi, Kenya and of P. O. Box 66827-00800, Nairobi
  • Gilbert Ebole Safaricom and MPESA Foundation Safaricom House, Waiyaki Way, Nairobi, Kenya and of P. O. Box 66827-00800, Nairobi
  • Sophie Onyango Safaricom and MPESA Foundation Safaricom House, Waiyaki Way, Nairobi, Kenya and of P. O. Box 66827-00800, Nairobi
  • Anne Gitimu Amref Health Africa in Kenya, P.O. Box 27691-00506, Nairobi, Kenya
  • John Kutna Amref Health Africa in Kenya, P.O. Box 27691-00506, Nairobi, Kenya
  • Happiness Oruko Amref Health Africa in Kenya, P.O. Box 27691-00506, Nairobi, Kenya
  • Herbert Barasa Amref Health Africa in Kenya, P.O. Box 27691-00506, Nairobi, Kenya
  • Vayonda Ongaya Amref Health Africa in Kenya, P.O. Box 27691-00506, Nairobi, Kenya
  • Tanya Nduati Flying Doctors’ Society of Africa, AMREF Kenya, Langata Rd, Nairobi
  • John P. Oyore Department of Family Medicine, Community Health and Epidemiology, P. O. Box 43844-00100, Nairobi, Kenya

DOI:

https://doi.org/10.18203/2394-6040.ijcmph20262691

Keywords:

Female genital fistula, Incontinence, Childbirth, Self-isolation, Reintegration

Abstract

Background: Female genital fistula (FGF) continues being a leading cause of maternal morbidity, especially in developing countries. Mothers living in rural and marginalized areas are the most affected, worst scenario, most unaware of the condition. This study explored the living experiences of fistula survivors both pre and post-surgery, guided by the transaction model of stress and coping.

Methods: A cross-sectional study design adopted. Qualitative data collected, thirteen In-depth interviews and four Focused Group Discussions in three counties, Bungoma, Kilifi and Kiambu Counties, Kenya. These counties were purposively selected, being beneficiaries of a program aimed at ending fistula implemented by AMREF Kenya and Safaricom Foundation. All the study participants were program beneficiaries. Data was coded and thematically analysed using Nvivo.

Results: The study established that FGF survivors had a difficult lifestyle pre-treatment due to incontinence and blistering. Some thought of fistula as a usual occurrence after childbirth hence never sought any medical service. Most of the FGF had been caused by childbirth complications, most mothers reported self-isolating themselves and being stigmatized. Post-treatment, mothers reported positive support from family and community members in reintegration process and successful childbearing. Mothers reported that their dignity had been restored after surgery.

Conclusions: FGF causes mental health conditions among patients and survivors if society members neglect the reintegration process. Mothers still suffer in silence from fistula effects, need to support the treatment and reintegration processes through funding and policies that will enable create a world free of fistula, a leading cause of maternal morbidities.

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Published

2026-07-31

How to Cite

Kilonzo, H., Basiye, K., Ebole, G., Onyango, S., Gitimu, A., Kutna, J., Oruko, H., Barasa, H., Ongaya, V., Nduati, T., & Oyore, J. P. (2026). Experiences of fistula survivors, a case study of Bungoma, Kilifi and Kiambu Counties, Kenya. International Journal Of Community Medicine And Public Health, 13(8), 4167–4174. https://doi.org/10.18203/2394-6040.ijcmph20262691

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Section

Original Research Articles