Assessment of quality of life of patients with leprosy treated at a tertiary care centre in western Maharashtra
DOI:
https://doi.org/10.18203/2394-6040.ijcmph20254042Keywords:
WHO, Quality of Life, LeprosyAbstract
Background: Leprosy still remains an important public health problem in India. Though effective treatment is available, but delay in diagnosis and seeking treatment often results in patients presenting with deformity and disability affecting their quality of life. This study aimed to evaluate the quality of life of leprosy patients with grade-1 or above disability and to identify certain factors affecting QOL.
Methods: A cross-sectional study was conducted at the Government Leprosy Hospital in western Maharashtra using the WHO quality of life assessment questionnaire, WHO-QOL (BREF).
Results: In the assessment of QoL, the lowest rating was observed in the social domain, and the highest was observed in the environmental domain. Males had better QOL scores in all domains as compared to their female counterparts. The internal consistency of WHOQOL-BREF was acceptable to the facets and domains.
Conclusions: Leprosy not only causes physical suffering but also impacts bodily image, leading to low confidence, ostracization from family and society, as well as economic deprivation, leading to poor quality of life.
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References
World Health Organisation. Global leprosy strategy 2016-2020. Accelerating Towards a Leprosy-free World. New Delhi: WHO South-East Asia Regional Office; 2016.
Rodrigues LC, Lockwood DNJ. Leprosy now: epidemiology, progress, challenges, and research gaps. Lancet Infect Dis. 2011;11(6):464-70. DOI: https://doi.org/10.1016/S1473-3099(11)70006-8
Van Brakel WH, Sihombing B, Djarir H, Beise K, Kusumawardhani L, Yulihane R, et al. Disability in people affected by leprosy: the role of impairment, activity, social participation, stigma and discrimination. Glob Health Act. 2012;5(1):18394. DOI: https://doi.org/10.3402/gha.v5i0.18394
Govindharaj P, Srinivasan S, Darlong J. Quality of life of people affected with leprosy disability living in Purulia, West Bengal. Int J Health Sci Res. 2018;8(2):221-5.
Brouwers C, van Brakel W, Cornielje H. Quality of life, perceived stigma, activity and participation of people with leprosy-related disabilities in south-east Nepal. Disabil CBR Incl Develop. 2011;22(1):16-34. DOI: https://doi.org/10.5463/dcid.v22i1.15
Mankar M, Joshi S, Velankar D, Mhatre R, Nalgundwar A. A comparative study of the quality of life, knowledge, attitude and belief about leprosy disease among leprosy patients and community members in Shantivan Leprosy Rehabilitation Centre, Nere, Maharashtra, India. J Glob Infect Dis. 2011;3(4):378. DOI: https://doi.org/10.4103/0974-777X.91063
WHO. Development of the World Health Organisation WHOQOL-BREF quality of life assessment. The WHOQOL Group. Psychol Med. 1998;28(3):551-8. DOI: https://doi.org/10.1017/S0033291798006667
Costa MD, Terra FD, Costa RD, Lyon S, Costa AM, Antunes CM. Assessment of quality of life of patients with leprosy reactional states treated in a dermatology reference centre. Anais Brasil Dermatol. 2012;87(1):26-35. DOI: https://doi.org/10.1590/S0365-05962012000100003
Kumar GD, John KR, Logaraj M. An assessment of quality of life among leprosy-affected persons residing in leprosy settlements of Chengalpet Taluk, Kancheepuram, Tamil Nadu. Nat J Res Community Med. 2016;5(3):149-54.
Bello AI, Dengzee SA, Iyor FT. Health related quality of life amongst people affected by leprosy in south ghana: A needs assessment. Lepr Rev. 2013;84(1):76-84. DOI: https://doi.org/10.47276/lr.84.1.76
Geetha K, Dhanalakshmi A, Judie A. A study to assess the impact of leprosy on quality of life among leprosy patients in government rehabilitation home at Paranur. Int J Pharm Clin Res. 2015;7(6):466-8.
Leite IF, de Arruda AJ, de Vasconcelos DI, de Santana SC, Chiana KS. The quality of life of patients with chronic leprosy. J Nurs UFPE Online. 2015;9(6):8165-71.
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