A comparative study of family burden and quality of life between caregivers of schizophrenia and dementia patients

Authors

  • Sarada Prasanna Swain Department of Psychiatry, Mental Health Institute (Centre of Excellence), S.C.B. Medical College, Cuttack, Odisha http://orcid.org/0000-0003-0194-5092
  • Sushree Sangita Behura Neuropsychiatric Consultation Centre, CDA, Sector-9, Cuttack, Odisha
  • Manoj Kumar Dash Department of Social and Preventive Medicine, S.C.B. Medical College, Cuttack, Odisha

DOI:

https://doi.org/10.18203/2394-6040.ijcmph20172169

Keywords:

Caregiver burden, Dementia, Schizophrenia, Quality of life, Family burden interview schedule

Abstract

Background: In chronic mental diseases, as the disease progresses, it carries with tremendous burden both physically and psychologically on the family members, who are usually in the process of caregiving. The quality of life (QOL) of these caregivers is directly related to the subjective and objective burden of the illness. The objective of the study was to assess and compare the level of family burden and QOL between caregivers of Schizophrenia and Dementia patients as well as to find out the relationship between family burden and QOL.

Methods: A total of 128 key caregivers (64 caregivers of each group) fulfilling the inclusion criteria purposely selected from the OPD of MHI, S. C. B. Medical College and Neuropsychiatric Consultation Centre, Cuttack. The impact of family burden on key caregivers of dementia and schizophrenia patients was assessed by using family burden interview schedule and the quality of life of key caregivers was assessed by using WHOQOL BREF scale. Data was analysed by using chi-squre, t test and pearson correlation. Data analysis was performed by SPSS.

Results: Statistical significant differences (p <0.05) were found in the areas of financial burden, disruptions of family routine activities, family leisure and family interaction between dementia and schizophrenia caregivers. Whereas there was no statistical significant difference (p >0.05) found in different domains of quality of life between these two groups of caregivers. There were significant negative correlations found between family burden and psychological, social relationships and environment domains of quality of life.

Conclusions: Caregivers perceived subjective and objective burden ultimately affecting their QOL. 

Author Biographies

Sarada Prasanna Swain, Department of Psychiatry, Mental Health Institute (Centre of Excellence), S.C.B. Medical College, Cuttack, Odisha

DEPARTMENT OF PSYCHIATRY

ASSSOCIATE PROFESSOR

S C B MEDICAL COLLEGE,CUTTACK.

Sushree Sangita Behura, Neuropsychiatric Consultation Centre, CDA, Sector-9, Cuttack, Odisha

Department of Clinical psychology, 

Clinical Psychologist

Manoj Kumar Dash, Department of Social and Preventive Medicine, S.C.B. Medical College, Cuttack, Odisha

Department of Community Medicine,

Senior Residence

References

Kreisman DE, Joy VD. Family response to mental illness of a relative: A review of the literature. Schizophr Bull. 1974;1:34-57.

Hatfield AB. Coping and adaptation: A conceptual framework for understanding families. In: Hatfield AB, Lefely HP, editors. Families of the Mentaly Ill. New York; Guilford; 1997: 60-84.

Magliano L, Fiorillo A, De Rosa C, Malangone C, Maj M, National mental health project working group. Family burden in long-term diseases: A comparative study in schizophrenia vs. physical disorders. Soc Sci Med. 2005;61:313-22.

Ferri CP, Prince M, Brayne C, Brodaty H, Fratiglioni L, Ganguli M, et al. Global prevalence of dementia: A Delphi consensus study. Lancet. 2005;366:2112-7.

Cohen D, Eisdorfer C. Depression in family members caring for a relative with Alzheimer’s disease. J Am Geriatr Soc. 1988;36:885-9.

Schulz R, O’Brien AT, Bookwala J, Fleissner K. Psychiatric and physical morbidity effects of dementia caregiving: Prevalence, correlates, and causes. Gerontologist. 1995;35:771-91.

Kalikaya G, Yukse G, Varlibas F, Tireli H. Caregiver burden in dementia: A study in the Turkish population. Internet J Neurol. 2004;4:2.

Srivastava G, Tripathi RK, Kumar A, Tiwari SC. Care needs of Indian urban elderlies and strain in their caregivers. Int Psychogeriatr. 2009;21:S198.

Emmatty LM, Bhatti RS, Mukalel MT. The experience of burden in India: A study of dementia caregivers. Dementia. 2006;5:223-32.

ICD-10. International Statistical Classification of Diseases and Related Health Problems, Tenth Revision. Volumes 1-3. World Health Organization, Geneva, 1992:94.

Folstein MF, Folstein SE, McHugh PR. Mini-mental state: A practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res. 1975;12:189-98.

Pai S, Kapur RL. The burden on the family of a psychiatric patient: development of an interview schedule. British J Psychiatry. 1981;138(4):332–4.

Development of the World Health Organization WHOQOL-BREF quality of life assessment. The WHOQOL Group. Psychol Med. 1998;28:551-8.

Srivastava G,Tripathi RK , Tiwari SC , Singh B , Tripathi SM. Caregiver Burden and Quality of Life of Key Caregivers of Patients with Dementia. Indian J Psychol Med. 2016;38(2):133-6.

Rice DP. The economic impact of schizophrenia. J Clin Psychiatry. 1999;60:4-6.

Raj EA, Shiri S, Jangam KV. Subjective Burden, Psychological Distress, and Perceived Social Support Among Caregivers of Persons with Schizophrenia. Indian J Soc Psychiatry. 2016;32(1):42- 9.

Bademli K, Duman ZC. Family to family support programs for the caregivers of schizophrenia patients: A systematic Review. Turk Psikiyatri Derg. 2011;22:1‐11.

Gutiérrez‐Maldonado J, Caqueo‐Urízar A, Kavanagh DJ. Burden of care and general health in families of patients with schizophrenia. Soc Psychiatry Psychiatr Epidemiol. 2005;40:899‐904.

Schene AH, van Wijngaarden B, Koeter MW. Family caregiving in schizophrenia: Domains and distress. Schizophr Bull. 1998;24:609-18.

Schulze B, Rössler W. Caregiver burden in mental illness: Review of measurement, findings and interventions in 2004‐2005. Curr Opin Psychiatry. 2005;18:684‐91.

Baronet AM. Factors associated with caregiver burden in mental illness: A critical review of the research literature. Clin Psychol Rev. 1999;19:819‐41.

Prasanth A, Padma V, Raju NN, Narasimha RM. A comparative study of care giver burden in psychiatric illness and chronic medical illness. AP J Psychological Med. 2010;11:16-20.

Tan SC, Yeoh AL, Choo IB, Huang AP, Ong SH, Ismail H, et al. Burden and coping strategies experienced by caregivers of persons with schizophrenia in the community. J Clin Nurs. 2012;21:2410‐8.

Reinhard SC. Living with mental illness: Effects of professional support and personal control on caregiver burden. Res Nurs Health. 1994;17:79‐88.

Santos RL, Sousa MF, Simoes-Neto JP, Nogueira ML, Belfort TT, Torres B, et al. Caregivers’ quality of life in mild and moderate dementia. Arq Neuropsiquiatr. 2014;72:931-7.

Awad AG, Voruganti LN. The burden of schizophrenia on caregivers: A review. Pharmacoeconomics. 2008;26:149‐62.

Downloads

Published

2017-05-22

How to Cite

Swain, S. P., Behura, S. S., & Dash, M. K. (2017). A comparative study of family burden and quality of life between caregivers of schizophrenia and dementia patients. International Journal Of Community Medicine And Public Health, 4(6), 2021–2026. https://doi.org/10.18203/2394-6040.ijcmph20172169

Issue

Section

Original Research Articles