Quality of life and barriers to access healthcare services among persons with disability aged 18-59 years in the area of Sarjapur primary health centre: a cross sectional study

Authors

  • Deepika Nagaraja Department of Community Medicine, St. John’s National Academy of Health Sciences, Bengaluru, Karnataka, India
  • Deepthi N. Shanbhag Department of Community Medicine, St. John’s National Academy of Health Sciences, Bengaluru, Karnataka, India

DOI:

https://doi.org/10.18203/2394-6040.ijcmph20233113

Keywords:

Persons with disabilities, Barriers, Quality of life

Abstract

Background: Disability is defined as any restriction or lack of ability to perform an activity in the manner or within the range considered normal for a human being. Apart from the type and severity of disability, factors such as socioeconomic and marital status are associated with poor QOL life among the PWDs There are distinctive barriers in accessing healthcare services resulting into poorer health outcomes among PWDs.

Methods: The objective of the study was to assess the quality of life and barriers associated with access to healthcare services among adults with disabilities in the age group of 18-59 years. This was a cross-sectional descriptive study done in Sarjapur PHC area. The sample size was calculated as 100. Stratified random sampling was used with each village as a strata. WHO BREFQOL was used assess the QOL and a face validated tool was used to assess the barriers in accessing healthcare services

Results: Among the 100 PWDs interviewed, 56% were males and 44% were females. The mean age of the study group was 35.5+11.6years. The median (IQR) QOL scores in each domain was as follows: physical 15.1 (12.0, 18.1), psychological 14.0 (10.6, 16.6) social 16.6 (13.3, 18.6) and environmental 16.0 (13.5, 18.0). There was a significant association (p<0.05) between education and QOL, marital status with psychological and environmental domain. The important barriers to access health services were institutional barrier (18%), attitudinal barrier (9%) and environmental barrier (7%).

Conclusions: The overall QOL was poor among the study subjects. Institutional barrier was higher when compared attitudinal and environmental barrier.

References

International Classification of Impairments, Disabilities, and Handicaps. Available at: http://apps.who.int/iris/bitstream/handle/10665/41003/9241541261_eng.pdf;jsessionid=20613D50223C305464317FB2B86C3DE5?sequence=1. Accessed on 20 February 2023.

World report on disability 2011. Available at: http://www.nlm.nih.gov/22726850. Accessed on 20 February 2023.

Census of India 2011 data on disability. Available at: http://www.disabilityaffairs.gov.in/upload/uploadfiles/files/disabilityinindia2011data.pdf. Accessed on 20 February 2023.

World report on disability. Available at: https://www.who.int/disabilities/world_report/2011/en/. Accessed on 20 February 2023.

National Sample Survey Office. Disabled persons in India: A statistical profile. Available at: http://mospi.nic.in/sites/default/files/publication_reports/Disabled_persons_in_India_2016.pdf. Accessed on 20 February 2023.

WHOQOL - Measuring Quality of Life. Available at: https://www.who.int/toolkits/whoqol. Accessed on 20 February 2023.

Gnanaselvam NA, Vinoth Kumar SP, Abraham VJ. Quality of Life of People with Physical Disabilities in a Rural Block of Tamil Nadu, India. J Psychosoc Rehabil Ment Heal. 2017;4(2):1-7.

Access to Health Services. Available at: https://www. healthypeople.gov/2020/topicsobjectives/topic/ Access-to-Health-Services. Accessed on 20 February 2023.

Tomlinson M, Swartz L, Officer A, Chan KY, Rudan I, Saxena S. Research priorities for health of people with disabilities: an expert opinion exercise. Lancet. 2009;374:1857-62.

Disability and Health Disability Barriers. Available at: https://www.cdc.gov/ncbddd/disabilityandhealth/disability-barriers.html. Accessed on 20 February 2023.

Barriers to disability inclusion - GSDRC. Available at: https://gsdrc.org/topic-guides/disability-inclusion/barriers-to-disability-inclusion/. Accessed on 20 February 2023.

Disability and health. Available at: https://www.who. int/en/news-room/fact-sheets/detail/disability-and-health. Accessed on 20 February 2023.

Defining disability. Available at: http://www.searo. who.int/entity/disabilities_injury_rehabilitation/topics/disability_factsheet.pdf. Accessed on 20 February 2023.

Modified BG prasad socio-economic classification, update - 2019. Available at: https://www. _Modified_ BG_prasad_socio-economic_classification_update_-_2019. Accessed on 20 February 2023.

WHO Quality of Life-BREF (WHOQOL-BREF). Available at: http://www.who.int/substance_abuse/ research_tools/whoqolbref/en/. Accessed on 20 February 2023.

Introduction, Administration, Scoring and Generic Version of the Assessment Field trial Version December 1996 Programme on Mental Health World Health Organization. Available at: https://www.who. int/mental_health/media/en/76.pdf. Accessed on 20 February 2023.

Religion Data - Population of Hindu / Muslim / Sikh / Christian - Census 2011 India. Available at: https://www.census2011.co.in/religion.php. Accessed on 20 February 2023.

Kuvalekar K, Kamath R, Ashok L, Shetty B, Mayya S, Chandrasekaran V. Quality of Life among Persons with Physical Disability in Udupi Taluk: A Cross Sectional Study. J Fam Med Prim care. 2015;4(1):69-73.

Disability and Poverty: A Global Challenge. Available at: https:// id=Z-szXbRsEzsC&pg=PA6&lpg=PA6 &dq=why+is+marriage+less+in+disabled+girls&source=bl&ots=9mDyKfFCOC&sig=ACfU3U35OvOvja_XwOh49knuIafYXuvKxw&hl=en&sa=X&ved=2ahUKEwjCgv6cmKnqAhU66XMBHb-VCm0Q6AEwCXoECAgQAQ#v=onepage&q=why is marriage less in disabled girls&f=false. Accessed on 20 February 2023.

Education and Socioeconomic Status Factsheet. Available at: https://www.apa.org/pi/ses/resources/ education. Accessed on 20 February 2023.

Quality of life among young adults in rural Selangor: A cross-sectional study. Available at: https://www. semanticscholar.org/Quality-of-life-among-young-adults-in-rural-A-study-Ahmad-Nawi/cc34d3eac 12849d979f45a73d49ddb626315c007. Accessed on 20 February 2023.

Mattevi BS, Bredemeier J, Fam C, Fleck MP. Quality of care, quality of life, and attitudes toward disabilities: Perspectives from a qualitative focus group study in Porto Alegre, Brazil. Am J Public Health. 2012;31:188-96.

Yan B, Yang LM, Hao LP, Yang C, Quan L, Wang LH, et al. Determinants of quality of life for breast cancer patients in Shanghai, China. PLoS One. 2016;11(4):23-8.

Broeckel JA, Jacobsen PB, Balducci L, Horton J, Lyman GH. Quality of life after adjuvant chemotherapy for breast cancer. Breast Cancer Res Treat. 2000;62(2):141-50.

Quality of life of women with breast cancer at a tertiary care hospital. Available at: https://webcache.google usercontent.com/search?q=cache:xk8jbu_8aCIJ:https://www.biomedscidirect.com/download/IJBMRF2011339/13/quality_of_life_of_women_with_breast_cancer_at_a_tertiary_care_hospital+&cd=1&hl=en&ct=clnk&gl=in. Accessed on 20 February 2023.

Akin S, Can G, Durna Z, Aydiner A. The quality of life and self-efficacy of Turkish breast cancer patients undergoing chemotherapy. Eur J Oncol Nurs. 2008; 12(5):449-56.

Davidson G, Irvine R, Corman M, Kee F, Kelly B, Leavey G, et al. Measuring the Quality of Life of People with Disabilities and Their Families Scoping Study Final Report. Available at: https://www.communitiesni.gov.uk/sites/default/files/publications/communities/dfc-measuring-the quality-of-life-of-people-with-disabilitiesand-their-families-scoping-study.pdf. Accessed on 20 February 2023.

Gangane N, Khairkar P, Hurtig AK, Sebastián MS. Quality of life determinants in breast cancer patients in central rural India. Asian Pacific J Cancer Prev. 2017; 18(12):3325-32.

Barriers to Participation by Persons with Disabilities-By Wamundila Waliuya Disability Rights Watch. Available at: http://disabilityrightswatch.net/barriers-to-participation-by-persons-with-disabilities-by-wamundila-waliuya/. Accessed on 20 February 2023.

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Published

2023-09-30

How to Cite

Nagaraja, D., & Shanbhag, D. N. (2023). Quality of life and barriers to access healthcare services among persons with disability aged 18-59 years in the area of Sarjapur primary health centre: a cross sectional study. International Journal Of Community Medicine And Public Health, 10(10), 3764–3770. https://doi.org/10.18203/2394-6040.ijcmph20233113

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Original Research Articles